BachelorStar Megan Marx Reflects on 'One of the Best Years of My Life' amid Degenerative Brain Disease

Mar. 15, 2025

Megan Marx shared updates in her ongoing ataxia struggle.Photo:Megan Marx/Instagram

Megan Marx/Instagram

Two years into her spinocerebellar ataxia diagnosis,BachelorstarMegan Marxshared that 2024 was “one of the best years of my life”— and she’s got a robust list of goals for 2025.

“After being diagnosed with a degenerative brain disease, I was determined to stick to my resolutions for peace in 2024. I did,” Marx, 35, shared in a Jan. 6Instagram montageof her year’s highlights.

As for last year’s resolutions, she “only had three: One. Find work in a job I find meaning in. Two. Spend more time in the ocean/nature. Three. Spend more quality time with my family (and friends that are family).”

Megan Marx shared an update on living with ataxia.Megan Marx/Instagram

Marx, whohad sharedthat she was diagnosed with therare neurological disorderspinocerebellar ataxia — a degenerative disease that impacts movement — said at the time that she had “lots of living to do.”

And she did; Marx wrote, “It’s been one of the best years of my life.”

As theCleveland Clinicexplains, spinocerebellar ataxia causes issues with muscle coordination — specifically with your eyes, hands, legs and speech. Its progression varies from person to person, but many with ataxia end up needing a wheelchair within 10 to 15 years, the clinic notes.

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She’s also planning to get her Master’s degree, she said, as well as “eat more cheese,” “pat more dogs,” and spend more “one on one time” with her nieces and nephews.

Megan Marx shared her resolutions for 2025.Megan Marx/Instagram

She also plans to finish her book,Our.Eulogies, which she’s been sharing in posts on thelike-titled Instagrampage. Ina recent post, she spoke about her ataxia symptoms, calling them “undignified.”

“I don’t yet know how to navigate the piracy of my own body,” she added. “My awareness is flexed like wings, changes that seem to punch overnight, bending and filling with ataxia while I sleep. It distresses me….”

But she ends on a positive note, writing, “I have a chair. It doesn’t matter if I can grip the back of the f—ing thing because I can still climb it.”

source: people.com